Walking on Sunshine!!!!!

Again, we begin with a message written by Maddy for you.
"Today I got to ride around in a wheelchair. I went through the fish tunnel"

Maddy's is really tired this morning because she WALKED!!!! Not a few steps, but 124 feet!!!!! AMAZING!
Here is the video link : http://www.youtube.com/watch?v=IeGykpA1LKI
At this very moment she is off her vent on another sprint. The sprints are what they refer to as the time she is off her ventilator, but on oxygen. She had two, 2 hour sprints yesterday and she is starting today off in the right direction.

Currently, her sats are in the low 90's and we are very pleased with this.
Overall, she is doing remarkably well considering how damaged her lungs are. If you look at the x-ray's alone you would not think she was able to make the progress that she has. She's incredible!!!!

We thank you for your continued love, support, & prayers. We love all of your heartfelt messages and truly believe that it gives Maddy the inner strength to push harder to get well. Thank you. We would also like you to continue to keep another special person named Frida in your prayers. She is a 25 year old woman who is in ICU with the same condition as Maddy. We know how incredibly difficult this is and we send our prayer to her and her family.

Thank you to all of you. We can't imagine going through our days without having you in our lives. We thank you, Family!

Let's go out and Walk with our heads held high! Walk for Madelyn, Walk for everything thing that she has had to overcome, and the hurdles that await her. Walk with an extra pep in your step because you are thinking of Maddy!


**Now, for Maddy......

"When we last met, Betty Sue Moo had just body slammed the Whirlwind of Illness and was not looking as though she was ready to budge anytime soon. Kitty Girl Johnson was in great shape considering her opponent was down for the count! 1...2...3...4....

All of a sudden Whirlwind of Illness somehow kicked up his heels and booted ole' Betty Sue Moo right off of him. She bounced around that ring like a pin ball machine * Boing * Boing * Boucne * Boing * Poor Betty Sue Moo was making the worlds largest milkshake! This left poor Kitty Girl Johnson alone in her fight!

**VVvvvvRRRrOooooMMMmmmmm....VVRRoo000MMmmm......**</span> Oh. My. Goodness, Ladies & Gentlemen, It looks like a freaky cat on a freaky machine. VVvvRRrrooommmm......
It's Pins & Needles Penny with her razor sharp claws, perfect for inflicting pain onto the Whirlwind of Illness! Pins & Needles Penny Pops a wheelie and lands right onto of the Whirlwind of Illnesses big toe! Ouch! That's gotta hurt Ladies & Gentlemen!
Pins & Needles Penny jumps off her bike and pounces on the Whirlwind of Illnesses back.
PPpppppRRrrrr......PPPPrrrrrr....PPpPpppRRrrrrr......Pins & Needles Penny is going to town on the Whirlwind of Illness! PPPpprRRrrrr.....All I can see Ladies & Gentlemen are her little claws kneading up and down, up & down. PPppppRRrrrr......
Kitty Girl Johnson is able to walk right up to the Whirlwind of Illness, with her hands on her hips, and tell him this. " You are going down!!!! You are not going to beat me!!!! I'm going to continue to kick your butt and walk right out of this Sacred Heart Dome one of these days!!!!" ( the crowd explodes in applause! )

Just then! OH NO!!!!! I can't look! ( the crowd is on their feet once again with mouths gaping! )

What will happen next to Kitty Girl Johnson??!?!

*Stay tuned for the continued adventure.....

Kitty Girl Johnson & Betty Sue Moo

I want to start today's' blog with a message, that was written by Maddy to you.

"Hi everybody! I am getting way better. My family has been sleeping here for a long time. Thanks for all of the cards, presents,and emails. I appreciate all of it!"

Madelyn is doing wonderfully today. She sat up in her wheel chair and was off her vent for two hours. Although she was still on her oxygen, which is great! She's doing wonderfully in her physical, speech, and occupational therapy too! Her numbers are continuing to stay strong and we could not be happier! That Maddy of ours is a fighter!!! She continues to amaze us each day with her strength!

We thank all of you for your continued support and prayers. Your messages make Maddy's day and is comforting for her to know that so many people love and care about her.
Thank you!!! I'm sure Maddy looks forward to the day when she can personally thank you, but until now I will help her with her messages to you.
Thank you for continuing to log on and share your words. It is appreciated greatly!

* On a side note, we ask for you to include a woman named Frida in your prayers. She is the girlfriend of my husband's co-worker who, just like our Madelyn, developed this rare infection including toxic shock syndrome and strep infection in her blood and is fighting for her life now as well. Maddy will be praying her her as well. Thank you.

Now, this is for Maddy!

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Welcome Back, Ladies & Gentlemen......

"Last time we tuned in, it was the bottom of Round 9 and Kitty Girl Johnson was about to pounce on the Whirlwind of Illness when all of a sudden, the crowd was on their feet...covering their eyes! It looked as though Whirlwind of Illness had gotten the better of Kitty Girl and he was just about ready to unleash his powerful body slam move!

"Oh! Look! UP there!!!!! Now, I have really seen everything!!! It looks like, a..A...A... COW tangled in balloons!!! Could it be!??! It looks like it's Maggie Moo's sister, Betty Sue Moo! Betty Sue & Maggie Moo were in the middle of a bake sale where there were selling their specialty ice cream & cow pies! MMmmmmm.... When Cocoa Puff sent yet another super-telepathic message alerting Betty Sue Moo that Kitty Girl was in trouble! Betty Sue Moo must have gotten tangled up in all of Kitty Girl's get well, dolphin, ladybug, and butterfly balloons while on her way to the Sacred Heart Dome here in Spokane. This, Ladies & Gentlemen is the first time I have EVER seen a cow fly! A pig, maybe....but, NEVER a COW!!!!! It's gonna take some quick thinking to get Betty Sue Moo down from there. Oh, wait! It's Cocoa Puff....on the back of Acrobat Alice! What are they going to do?!?!? It looks like Acrobat Alice is using her talented circus skills and has climbed up to reach Betty Sue Moo. It's as though they have a plan, Ladies & Gentlemen! Acrobat Alice has just leaped from the suspension cable and....OH!!!!!! ** POP**POP**POP**POP** Acrobat Alice is using her super sharp claws to pop all of the balloons!!!! Betty Sue Moo is staring to rapidly fall from the ceiling of the Sacred Heart Dome! I can't look!!!!!!! ( the crowd Gasp! )
But wait! What?!? Ladies & Gentlemen.....Betty Sue Moo is falling hard...and fast!! It looks like she is going to land herself right on top of the Whirlwind of Illness!!!! Now this, Ladies & Gentlemen, is what I call UDDERLY AWESOME!!!!!

**ME***O0o0ZzzAaaa**!!! Kitty Girl Johnson, with the help from Betty Sue Moo has just landed THE body slam, of all body slams Ladies & Gentlemen! I have never seen anything like this in the history of fighting! Kitty Girl's Coach, Dr. Lee is doing cartwheels around the ring he is SO impressed by Kitty Girl's skills! **ME**O0ooWWwwZZzzAAaa****

Ladie's & Gentlemen, Whirlwind of Illness is still down....1...2...3...4.....
Betty Sue Moo won't budge! Will this be the end for Whirlwind of Illness!?!??! Will Kitty Girl Johnson continue to reign as the all-time boxing champion of the world???!??!

*Stay tuned as the Adventures of Kitty Girl Johnson continues...

Strength

Madelyn continues to show us how truly strong she is. Her strength, both physically and emotionally, is what is getting her through this. She pulls from each of the people she encounters, whether through her nurse who adjusts her meds or you, at home, logging in and sharing your heartfelt thoughts. Her parents and Sister, Mallory are also sharing their continue strength and love, which feeds her soul and truly comfort her and lets her know that she's doing an awesome job! I believe that it also gives her permission to keep up in her fight and understand that her family has never been prouder to call her daughter, sister, granddaughter, or niece.

Yesterday, Maddy was able to be off her vent for a two-hour period, still on oxygen though to help her out. She was also able to sit up, which was wonderful for her.
Her numbers continue to show improvement each day and we are in awe at her strength!

Madelyn, Keep up the Awesome job! Your strength is inspiring and we are all here cheering you on along you way!

Continued thanks goes out to all of you who are keeping Maddy in your thoughts and prayers. We appreciate everything that you have done and are continuing to do to help us out. Thank you!

For those who are waiting for the Kitty Girl adventure to continue....just a little longer.

Let's live our day today, with the strength and determination of Madelyn Johnson!

Giving Thanks

Being Sunday, as many of you are off to church we think of how blessed we are,and about giving thanks for life.
Growing up, every Sunday our church was the Pioneer Cafe. It was time spent together and I believe it was an understanding that happened....we were thankful for the time we had together....and the extra whipped cream on our cocoa! : )

So, wherever you give thanks for being alive, whether it be in a temple, a church, or a cafe, please keep Madelyn in your thoughts today. It is truly a miracle that she is alive and I for one, am so completely and sincerely THANKFUL! I am actually brought to tears at the very thought of how amazing Madelyn is. To be so strong and to never give up! Maddy, YOU inspire me to live my days as fully as possible! Thank YOU Maddy for being SO brave!!

Yesterday, Madelyn's Infectious Disease doctor was at the hospital and when he came into Maddy's room he was completely blown away by seeing Madelyn! One, he could not believe she was even alive because he had never seen a kid come in that sick and live! And Two, to see her progressing so well is incredible. This speaks volumes to the very special person Maddy is and that her life was spared because we needed her here to fill our days with chatter about butterflies, bugs, kitties, and motorcycles. Oh, and frog bay too!

Maddy is continuing on her way. She continues to live in the ICU unit as her lungs heal and she works on becoming stronger. She was taken off her ventilator, yet on oxygen for about an hour to begin her lung function testing and healing. They will continue to do these kinds of tests as her numbers continue to improve. Other than that, her numbers are staying pretty much the same and we are happy about that! Way to go Maddy!!!!

We are thankful for each of you, our extended family who have prayed, fed, and loved with the very best of you! Thank you for always keeping a special place in your heart for our Maddy. We also ask you to continue to keep her in your thoughts and prayers as you move through your day.

My heart overflows with gratitude for Madelyn Marie Johnson being in our lives.

Madelyn the Great!

Thank you for logging on once again to monitor the progress of our Madelyn. We so appreciate all of your loving, supporting words. It's not only comforting to Maddy, but to the entire family. Thank you.

Madelyn had a very exiting day yesterday!!! She received a small, talking computer device that she can type in what she wants to say, and it speaks it for her! Very Cool! Yet, another reason we LOVE Sacred Heart. Thank you!
Madelyn also received a super special gift from her Dad's Friend's Rod & Kristen and his entire family....an new laptop computer with web cam & all the bells and whistles for helping her in communicating and playing with her webkinz. Awesome! Thank you!!

Maddy's numbers are hanging tough today. About the same as all week, which is awesome and we are very happy & grateful for. She's continuing to show us all how very strong she is, which is no surprise at this point because we know that she ROCKS!!!!!

We continue to give our sincere thanks to all of you. The support at Sacred Heart is truly amazing. From the comfort that is given through a warm bed so they don't have to
sleep too far away, to the warm socks for Maddy....Thank you!!!!
Continued thanks to all of you.....our family & friends who do so much in so many ways. Thank you!!!!

Here's to our Madelyn the GREAT! Thank YOU Maddy for working SO hard for us! We know how much you want to be well and you work incredibly hard each hour of your day to fight to get there. We love you and are cheering you on all along the way. Keep up the Awesome job Mad!




*No new adventures just yet today. Will need to wait for the Kitty Girl Saga to unfold....after auntie sharla finishes her napa wedding. : )

Kitty Girl Power

I hope that as you are logging on to Maddy's blog you are taking a moment to remind yourself of what a wonderful day it is and how lucky we are to have our lives touched by Madelyn. Thank you Madelyn, for reminding us the meaning of love and strength....and that miracle still happen!
This morning Maddy is doing much better. That Mad of ours knew why she as sick and she was able to communicate the she thought her feeding tube was in her esophagus. Sure enough the x-ray reveled that to be true. They moved it down to the right spot and bingo! She's all set now and feeling much better. Her peep is @ 6 w/ the O2 at 35% and her sats are in the mid to high 80's this morning. Her and her sister Mallory are playing their the DS games and hanging out this morning as Maddy gears up for more physical therapy. Maddy is SO strong and we are SO proud of her!!!!
Yesterday Maddy received some new gifts from the Wishes program at Sacred Heart. New games and super cute socks for her super cute-sparkly toes. Thank you Sacred Heart for continuing to support Maddy and our family. You can view the video at : http://www.youtube.com/watch?v=aUo_tgNmYk0

Again, thank you for continuing to keep Madelyn in your thoughts and prayers. If you feel more comfortable sending a private message to Maddy you can email her at kittygirlmaddy@gmail.com. Please continue to post comments on the blog page as well. This is how Madelyn starts her day and it gives her great comfort.

THANK YOU to all...you, our FAMILY!!!! Thank you! We feel you love and are filled with much gratitude. Thank you!

Now.....on to the continuing adventure of Kitty Girl Johnson.
( your auntie sure does love you Maddy! xoxo )



“ I can’t look!!!!……
Whirlwind of Illness has grabbed hold of Vallory Van Vohnson’s magical guitar and it looks as though he’s going to succeed in stealing it away. We don’t want that magical guitar to end up in the hands of the evil, Whirlwind of Illness!!! ( the crowd gasps! Ooohhhhhh!!!! )

Oh….My….Goodness, Ladies & Gentlemen!!!! If I didn’t know any better, I’d say that I see Cocoa Puff riding on the back of a…. a….A CAT! What?!?!!?
Could it really be Acrobat Alice, the Trapeze Cat?!??!
Cocoa Puff the hamster must have sent another telepathic message that the Johnson Girls were in trouble over here at the Sacred Heart Dome. Acrobat Alice is twirling and spinning…..and jumping & dancing around the ring. Whirlwind of Illness is mesmerized by her dance. So mesmerized that he does not notice that Cocoa Puff is about to unleash his POPSICLE POWER!!! Just then, Vallory Van Vohnson takes control and again, lays down an even more powerful riff on her guitar! Then, Kitty Girl Johnson lands a powerful left uppercut! **ME*0oo0WwwZZzzAAaa** Whirlwind of Illness is down once again, Ladies & Gentlemen! 1… 2…. 3…..
And, if that wasn’t bad enough for the Whirlwind of Illness, Acrobat Alice is now kneading her claws on his back! Way to go Acrobat Alice, Way to go! PPPRRRRrrrr…….Acrobat Alice is so very happy! She’s happiest when she is defending her Johnson Girls. “

*Ding-Ding: “Round Nine is starting off strong for Kitty Girl Johnson! Vallory Van Vohnson however, is still on tour in Tokyo promoting her latest, chart-topping album and must leave for a short while. This is what happens when you are an American Idol winner!
Kitty Girl is showing off her trapeze skills, taught to her by Acrobat Alice as she climbs up to the top rope of the ring to pounce on the Whirlwind of Illness.
OH NOOOOOooo!!!!!!!!! ……. I don't want to watch!!!" ( the crowd are on their feet, covering their eyes ) OOOoooooHHHhhhhhhhh!!!!!!!!!!!"

*Stay tuned for the continuing adventure of Kitty Girl Johnson

The Legend of Kitty Girl & Vallory Van Vohnson

Madelyn is continuing to show her amazing strength and ability to beat the odds that appeared to be stacked against her a little over three weeks ago. Maddy is Strong! Maddy is Brave! Maddy is Awesome!
Yesterday Madelyn was able to stand and take a few steps in physical therapy!!! This is especially incredible since she didn't have her vent on for about 30 seconds during this. AMAZING JOB MADDY!!! They have removed her pic-line and her peep is now @ 7 w/ the O2 @ 35%. She is continuing to initiate her own breaths too! Her sats continue to fluctuate from the high 80's to the mid 90's. Her lungs still have a way to go in their healing, but overall we are SO very grateful and Proud of Madelyn's accomplishments. We all feel for poor Mad because we understand that her lungs hurt and it's really hard to be stuck in the hospital. We understand that she would give anything to be able to talk our ear off once again and we anxiously, but patiently await the day to hear her fabulous stories about bugs, butterflies, cats, and motorcycles. We cheer her on every step of the way!

As usual, we want to thank all of you who not only log on to share your love and well wishes with Maddy. And, for each of you who take a moment out of your day to say a silent prayer for our Kitty Girl! Thank you to everyone at Sacred Heart. Your love, which comes through in so many ways, is greatly appreciated. Thank YOU, FAMILY!

* Just a side note, Maddy has been feeling kinda crummy this morning with an upset tummy from the change in her feeding stuff. If you need to reach Kara & Bob, please make all calls to Bob's cell # 701.1790. Kara is needing some quiet time with Maddy to help calm her while she's feeling so bad and we want to respect that as much as possible. Thank you so much for your care & concern, we really appreciate it....and we appreciate you! Thank you.

Now, on to more important things.....It's time to bring yet another SMILE to our Maddy's face! Oh, and yes. Maddy ate a grape popsicle! Mmmmm....

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"Ladies & Gentlemen, Do you hear that??!?!" ( Hot Pink Smoke and Glitter fill the Sacred Heart Dome )
Kitty Girl Johnson takes a moment to look up from the pummeling she's doing on Whirlwind of Illness as her face lights up like a Christmas tree.
As the smoke & glitter clears the Sacred Heart Dome, it is replaced by the ear piercing guitar solo!!!! "Look!!! Over there!!!! I cannot believe my eyes...and ears! Ladies & Gentlemen! It's the world famous, Vallory Van Vohnson with her legendary, magical guitar!
Now, what you may not know is that Vallory Van Vohnson is the younger sister of Kitty Girl Johnson! Her magical guitar sends supersonic, ear-piercing tunes into the ears of anyone who comes to terrorize her sister. Cocoa Puff was able to send a super telepathic message to Vallory while she was on tour. She hopped on her super-charged motorcycle and blasted her way to the Sacred Heart Dome to help her sister in the knock-out of her life!"

*Ding-Ding: "It's the bottom of Round 8 Ladies & Gentlemen and Whirlwind of Illness is trying to get on his feet after Kitty Girl Johnson crushed her writing board over his head. Yup. It did leave a mark. His head now reads, Kitty Girl was here! Ouch!
Cocoa Puff is simply beside himself with the arrival of Vallory Van Vohnson. Vallory Von Vohnson enters the ring, with her supersonic guitar in hand. She takes a stance and burns out some pretty powerful riffs on her electric guitar! Whirlwind of Illness is running around the ring like a crazy man! What!??! Are those tears in his eyes Ladies & Gentlemen???? Whirlwind of Illness is crying like a baby! WhhAAaaHHhhh! He's begging Vallory Van Vohnson to stop! Kitty Girl & Vallory explode into laughter. This is going to be way too easy!!!! Nothing can stop this dynamic duo in taking down The Whirlwind of Illness!
Oh NOOOooooo!!!!! ( the crowd jumps to their feet!!! ) Whirlwind of Illness has grabbed onto the supersonic guitar! Will he be stopped? Will Vallory Van Vohnson & Kitty Girl Johnson be able to fight off the Whirlwind of Illness??? I can't look Ladies & Gentlemen! I can't!!!!"

* Stay tuned for the continuing adventure of the Johnson Girls.